Take nothing for granted

Had a phone call from Mrs Dap last thursday saying our 11yr daughter had been sent home from school after complaining of a headache and throwing up everywhere. So Mrs D puts her to bed with a painkiller and a sick bowl. Around tea time the headache is no better cos she can’t keep a painkiller down long enough for it to work so Mrs D calls the doctor. He comes out about 6pm and says a night in hospital is in order purely for observation and to get some fluids and a painkiller in her. No need to panic. I had just parked up in Reading services when the mrs phoned me and i asked do i need to come home? No she says, it’s not serious and besides you’re home tomorrow anyway.

So the next morning i’d just done my 2 drops in London when the phone goes. Mrs D in floods of tears saying Sophie had been moved to the High Dependency Unit cos she’s had some kind of seizure. Right, i’m on the way home anyway, will be there pronto. I get to the hospital and there’s our girl lying there sleeping. Mrs D says the doctors don’t know whats wrong but they’re not ruling out a stroke, she is unable to move her left arm or leg and the left side of her mouth is drooping. They’re doing tests. Bloody hell, i can’t tell you the emotions i felt then but uselessness would be near the top of the list. Big strong me unable to help our little girl lying just 18 inches away from me.

So we sit and watch and wait while the doctors push and prod and take blood for tests. Sophie comes around a few times but is very groggy and she is soon back to sleep. Around 11pm the doctor says we’re moving her to the University Hospital in Cardiff. We’ve done all we can here (The Royal Gwent in Newport). They got better machines in Cardiff and more specialist doctors. We get to Cardiff about 1am.

The next day there is still no change. Still no movement on the left side and still very groggy. They give her a CT scan and an MRI scan for which she had to be knocked out. They’ve even called in the top neuroligist in Wales who came in on his weekend off to have a look at her. Dr Johann Water Naude (top bloke). He came to tell us that the MRI showed it wasn’t a stroke but we still don’t know exactly what the problem is. The thing with the brain is that it is very difficult to diagnose a problem. A lot of the time you have to diagnose what it isn’t and then work from there. But it seems she has had some kind of fit and has been in a constant state of siezure ever since.

So he decides she needs a lumber puncture to relieve some of the pressure on the brain and to give her some anti convulsive drugs. So he did and very slowly she woke up. Still groggy but you could tell she was more alert. She was also talking sense and not just babbling like she had been before. She stayed like that for about 10mins and then went back to sleep. She still had no movement on the left. The next day (Sunday) showed a small improvement. More tests followed. Gradually over the week she’s got better and stronger. Movement retured to her arms and legs and mouth, and Dr Johann finally agreed to let her home after he watched her run up and down the hospital corridor on wednesday. She finally came home yesterday and looks like nothings been wrong at all. The final diagnosis was that she suffered a complicated migrane. First i’ve heard of it but apparently it’s been known to have this effect on those who get it. Bloody frightening i’ll tell you. She’s got some medication now to stop it from happening again. The family is back together now. Daughter no. 2 is back from her holiday with her auntie, and the dog is back from Mrs D’s friend who looked after her. I’m back in work on monday after this short notice week off. Fair play to Eddie, he said take all the time you need and give us a ring when you’re ready to come back. Tell you what, i’m taking nothing for granted again. Life as you know it can come apart so quickly.

Two more things i have learned this week is that doctors still really know nothing about the brain, and that nurses really are angels. The care they provided was 1st class both in Newport and Cardiff. Especially on the HDU where there were little babies no bigger than my forearm recieving the very best care and attention and love. Non stop. I’ve no idea what wages they’re on but whatever it is it should be tripled.

As an aside, when Sophie was put to bed that 1st day when she came home from school Mrs D left the dog in her room with orders to look after Sophie while she went downstairs to do some chores. The dog got bored after 2 mins, stuck her nose in the sick bowl, had a sniff and then wandered back downstairs. Bloody useless! Must be revenge for that stupid hat she was made to wear last Christmas.

You had me thinking there was going to be a bad ending wwhen I started reading your post …
… thankfully all seems to have turned out as good as possible :smiley: :smiley: :smiley:

when is she due to go back to school :question:

Big (((HUGS))) from someone who knows first hand just how scary neurological stuff can be. Glad the outcome has been a good one, despite the worry.

Oh, and yeah, it was probably the hat that did it. :wink:

Thanks Lucy.

Back in school Monday Rog.

DaiDap, all the best for your daughter, and your family,
& also a thank you to your understanding boss, YES nurses do not
get the wage that they desevere ,and they are all Angels; AS WELL:

bloody fantastic ending for you all. :smiley:

fingers crossed you dont have to go through that again good result in the end

Glad to hear all’s well .
Yes I think we’ll all agree nurses are over looked every time. The hours they put in when not being paid etc
Just make sure the dog has to wear that hat again :laughing:

Thanks for the kind words folks. Sophie is right as rain again. Like nothing ever happened.
As for the hat, i’m sure it’ll be dug out in time for next Christmas. :grimacing:

(I’m positive this dog can read, she’s just slunk away very quietly!)

That all sounds very scary, especially the lumbar puncture :frowning:

Glad your girls are all ok and back home with you, DaiDap!

Best regards to all the family :smiley:

I can sympathise with you mate, my 17 year old daughter (also Sophie) was ill last Sunday afternoon and we thought it was the flu. Monday morning came and was despatched to the chemist to get some Nurofen and paracetamol. Missus went to work and I was the nurse. I was off on holiday for the week as we were going to Dublin on Tuesday for a few days. Her headache got worse so I called our docs for advice. was told off the triage nurse to do as I was doing and give her the painkillers where necassary and there was no further advice she could give. after about an hour Sophie was no better, so called the docs again and asked to speak to my doctor. He told me to bring her to the surgery and I told him she was too ill, so he agreed to send out the doctor on call.

Within 10 minutes, she was delerious and could neither speak properly or recognise me, so I dialled 999. A fast reponse car arrived and they immediatly called for an ambulance. I am fortunate to live just 2 minutes from an ambulance station and they were straight there. Sophie was deteriorating and at our local hospital (which specialises in neuro luckely) Sophie was given drugs to make her sleep for her own good and also massive doses of antibiotics. She was given a cat scan as they thought she may have a bleed on the brain and also a lumbar puncture. The lumbar puncture revealed that she had bacterial meningitis, the worse type apparently. We were taken to see her in intensive care and she was on an artificial repirator and had tubes all over, I just fell to pieces, it was awful. The doc got us into a quiet room and told us she was stable, but the infection could cause problems with her organs, and only time would tell.

The next day she was taken off the drugs that made her sleep and she woke up like a wild person, she was screaming and swearing and still in pain and she still did not recognise us. The hospital said this was normal as the brain was badly irritated and it would wear off. She got slowly better during that day and has done up till today (Friday) and she is making fantastic progress and they are saying she might be coming home on Monday. The medical team are really happy with her progress and does not seem to have any loss of faculties or damage. In fact she is bored now with being in hospital! My wife is staying over and I take over in the morning.

Anyone with kids with similar symptoms, waste no time, also check their hands and feet, if they are cold, get them to hospital asap.

I would like to thank all the staff at the Intensive Care Unit at Newcastle General Hospital for saving my childs life.

:open_mouth: :open_mouth: :open_mouth: :open_mouth:

bloody hell chris thank god for the happy ending.

Thank god all’s well that ends well, Chris. Thinking of you all. (((HUGS))).x.

My god, thats bloody frightening. Glad she’s on the mend mate.