Some good news for me at least. At my post op inspection on Wednesday the doc said ‘no cancer’. All I have to do is have someone’s finger up my bum and a blood test once a year for the rest of my natural and job done. A small price to pay for peace of mind.
So come on all you over 50s brace yourselves, it doesn’t hurt and it isn’t really all that embarrassing, but it could save your life.
If you’re still reading these pages George, sorry I missed our Sunday chat last week but I have been called away urgently to help a friend who has loads of dogs to look after while she herself is on a mercy mission to Holland. Don’t have the credit for international mobile to mobile and using her landline is a bit cheeky I think. Hopefully I’ll be back home by Sunday so will call then or Monday.
Did you get to talk to Steve, he did get your number off me?
Hi everyone sorry Dave and Steve for getting you so worried I am back at home for a few days then going back to hospital on Saturday only for a few days then I move into a new sheltered housing place in Rudgwick. I am a new drug which has lowered my pain levels and improves my mobility quite a bit, I will be looked after continuously by both my Macmillan nurses and the NHS nurses but I have made my decision to be at home when my time comes. Sorry Steve but this is one race I want to come secound not first but we could go for a tie and really bugger up the man with the scythe.
I will keep updating whenever I get the chance
i’m with you on that one george, i think we should just take it easy then and not race.
at least you’re still with us, i’m just glad i decided to give your house phone another go.
you take it easy, i’ll give you a call on monday to see how you’re settling in.
No apologies needed George, not from you anyway, although I have got a little humble pie to eat after the mild roasting I gave the lady who replied from Macmillan. She was only doing her job but I got a little annoyed with all that Data Protection Act nonsense.
Glad you’re still with us and thinking positive thoughts. I’ll give you a call very soon.
I have not posted for quite a while for many reasons, mainly because my health goes up and down and I never know how I will feel until the day starts.
The cancer is very aggressive and spreading throughout my body, I now have hot spots in my skull, shoulders, arms, ribs, lower spine, pelvic area and legs. I am lucky in the fact that it has not yet attacked any of my major organs which will be the cause of my death. Getting about is now very difficult without my walking aids indoors and when I go out I have a wheelchair or on a good day my mobility scooter, I also have a mobility car which has been adapted for my use which is a god send when I feel well enough for a trip out.
Spardo calls me every Sunday morning to make sure I am still ok and he is on my Macmillan nurses list to contact when the time comes, hopefully not too soon. My time is taken up with Macmillan and getting information out to the men out there regarding Prostate cancer and also the little that is done for all cancer patients and carers.
I am on 200mg of morphine per hour plus Fentanyl 800g for pain breakthrough when it occurs, this is backed up with various drugs which try to slow down the cancer spread, all of which give me hot sweats you could not imagine. The pain never goes completely so you tend to get used to it and only when the break through pain happens do you realise what pain can mean.
No rosey picture but if it makes you think about getting tested for PSA levels then good.
Safe journey all
George
George sorry I havn’t been in touch.
I got your contact details off of David but me being me managed to delete the email before I had wrote it down .
Could you P.M me your contact details and I’ll arrange to come down, on the trike with Trina, and see you.
hiya,
george, have been looking out for your posts nice to see something from you, not the best news but nice to see you’re as cheerful as can be, you may remember we’ve spoken on here before,i’m hopefully recovering from the “c” thingy so i have a good idea how you feel, keep your chin up mate it’s all one can do and good luck.
thanks harry long retired.
stormnation:
Some of the guys on here will not care for what i say next but that isn’t my concern. I’m no billy graham but i do believe in the healing power of God! Prostrate cancer can be healed by God, no matter what doctors say My prayers will definately be with you funnyfut.
Don’t underestimate the power of prayer.No miracles are guaranteed,but there are some people who have benifited.
Our prayers are with you.
Thanks for the kind wishes all, I will try to keep you all updated when I can and if not Spardo will pass on any news, he has been a great help over the the months with his phone calls every Sunday mornings.
With regard to prayer and the power of healing, I have been lucky enough to have a close friend who suffers from MS who regually takes me to church for prayer and although I have not had any miracle cure I find it very helpful in understanding the sense of inner peace which it provides.
This week I have my usual hospital visit providing them with my blood samples and then more MRI scans followed up with the pallative care nurses checking my various needs. The good old DWP have been slow in paying me any form of benefit until my Macmillan nurse got involved and when she obtained a DS1500 form from my doctor, which states my life expectancy is 6 months or less, then because of this the DWP have to pay me full benefits with no further questions. This has given me a financial boost so at least I can go out now without the worry of being able to afford the costs of buying something as small as a cup of coffee.
My Mac nurse took me to a local fete today which was very good and we were lucky enough to have the sun shine with us all the time we were there and now I am back home I am tired out and ready for bed so I will go for a lay down.
Safe journey all
Georgee
Hey, who says you ain’t lucky George? ■■■■■■■ down with rain and then it brightens up for your trip out.
No dramas I hope with the machinery. Still can’t get that image out of my mind of you and Sheila careering out of control at the garden centre.
Stay lucky mate, will contact you somehow next weekend while we are away.
Since my doctor confirmed several months ago that after having a Low Glucose Tolerance for over 30 years,I now have type 2 Diatetes.I am very lucky that it’s only by the hospital blood test that shows that,my own symtons don’t seem any different,and I am still on the diet I have been on for years,and that is not too strict at the moment.
However,to monitor my situation,my practice diabetic nurse gives me a blood test every 3 months,no sweat.This last timeI have asked for a check on my prostate condition.(When you have a blood test,they only usually check for the condition you have).The doctor did state that any reading given on the condition of the prostate through a blood test was “not conclusive”.I insisted that it was checked anyway as that is not a good enough reason NOT to have it checked.
On the result of my last test,I was told it was clear.I asked how often the check was recommended and told that every 12 months is sufficient.
Spardo:
Hey, who says you ain’t lucky George? ■■■■■■■ down with rain and then it brightens up for your trip out.
No dramas I hope with the machinery. Still can’t get that image out of my mind of you and Sheila careering out of control at the garden centre.
Stay lucky mate, will contact you somehow next weekend while we are away.
This “incident” didn’t happen after I spoke to you did it George.
You may wanna think twice about Saturday if it did
I had my latest results yesterday which unfortunately were not good, my PSA count has shot through the roof, 191, which means that all the drugs for slowing the cancer growth are not working. The cancer is very aggressive and now is continuing to attack my body without any resistance from the medication. I have been offered both Chemo and Radiotherepy but the side effects outway the treatment as it would only prolong my life by a maximum of 2-3 months and I would rather spend these last months being able to get out and not suffering the sickness and fatigue these treatments would give me. The average time for my stage of this particular cancer is 6-8 months so at least I will reach my 60th birthday as I still want to claim my extra benefits from this tight goverment and I will enjoy that.
On a brighter note Sean came down on his trike on Sunday and took me out for a ride which was great he really cheered me up and made sure I had a good time, so thanks mate you made my weekend a one to remember.
I will post again when I can to keep you informed of my progress.
Drive safe all
George
funnyfut:
The average time for my stage of this particular cancer is 6-8 months so at least I will reach my 60th birthday as I still want to claim my extra benefits from this tight goverment and I will enjoy that.
Hi George,
Been following your posts on this topic, never posted as didn’t feel it was my place to or whatever. I’ve got to say your are a fantastically courageous guy and I really admire you for what you’re going through. In relation the the above quote, what a fantastic incentive to keep plugging away, they’ll happily roll money out to people/organisations who don’t deserve it but don’t supply it to those who do. Keep in there and I look forward to hearing what you get up to.
hiya,
george does it depend on the area you get the treatment what benefits one gets? a friend of mine also suffering stomach cancer same age as myself, had the majority of his stomach removed as did i he had all his treatment in another hospital he told me the macmillan nurses got him lots of benefit extra’s filled his paperwork in for him and liased with him even after release, myself on the other hand saw a nurse on diagnosis given her card and told if necessary ring anytime, never heard anything since, that was two and a half years ago, have never had as much as a bean extra, have tried under my own steam but always told i don’t qualify.PS tried to contact macmillan on release from hospital told would get back, still waiting.
thanks harry long retired.
Hi All
Sorry Harry for not replying to you question sooner but I have not been too good, as far as I know it does not matter where you are regarding the benefit payments and with Macmillan all I can say is if it was not for them I would have given up ages ago. They have helped me through all the benefit payment issues and made sure that the treatment I get is the best and if I call no matter what time of day, they respond immediately. I must also say that Steve helped me a great deal, then and even now as I regularly use his words of wisdom he gave me. I have now given a GS1500 certificate to the DWP and I now qualify for every benefit possible as the document is certified by my doctor which tells them I have about 6 months left in my life. That does not mean I will definately go by the end of 6 months as I plan to see he new year in first.
My problems now are the pain which is very difficult to control as I will not have the radio therapy because I wish to be able to get out when I can without being ill from all the side effects, same with the chemo. I am on 400 mg patches and use a fentanyl (morphine substitute) spray for when the pain gets to much to bare, but I am happy as usual. I do not class myself as brave or what ever, when you are given a time to live you either accept it and make sure what is left is used as you wish or give in to it, I will not give in.
I will pop back again just to keep you up to date, if anything goes wrong Spardo will let you know so drive safe everyone and I will post again soon
Cheers
George
.
My prayers will definately be with you funnyfut.